Nicola Worsfold

A highly qualified and experienced biotech professional, with a strong background in molecular biology, genetics, and rare disease research and clinical practice. A proven track record of developing and leading successful projects and programs in collaboration with multi-stakeholders, including researchers, clinicians, industry partners, government, and patient groups. A passionate and effective advocate for the rare disease community, with a personal connection to Duchenne muscular dystrophy.

Compliance to Duchenne Muscular Dystrophy Care Considerations in Canada Osman, H, Lintern, S, Larocca, V, Adamji, Z, Beattie, E, Worsfold, N, Selby, K, Campbell, C, Lochmuller, H, The Canadian DMD Care Considerations Group Poster Session 86, 2023 Ottawa International Conference on Neuromuscular Disease & Biology

Mapping a national Duchenne Muscular Dystrophy registry to the International Classification of Functioning, Disability, and Health. Westbury, G, Bourcier, D, Hodgkinson, V, Dyck, A, Worsfold, N, Osman, H, Korngut, L, & Sheriko, J, on behalf of the CNDR Investigator Network Poster Session 34, 2023 Ottawa International Conference on Neuromuscular Disease & Biology

The Neuromuscular Disease Network for Canada (NMD4C): An interdisciplinary national collaboration to tackle unmet needs for NMD research and care Beattie, E, Amin, R, Brais B, Campbell, C, Warman-Chardon, J, Davis, J, Dowling, J, Gagnon, C, Gonorazky, H, Karamchandani, J, Korngut, L, Kothary, R, Lintern, S, McMillan, H, Oskoui, M, Osman, H, Selby, K, Worsfold, N, & Lochmüller, H, Poster Session 108, 2023 Ottawa International Conference on Neuromuscular Disease & Biology

A Collaborative National Duchenne Muscular Dystrophy (DMD) Registry for Real World Evidence. Hodgkinson-Brechenmacher, V.; McCormick, A.; Sheriko, J.; Lounsberry, J.; Osman, H.; Worsfold, N.; Campbell, C.; Mah, J.K.; McAdam, L.; Selby, K.;Koenig,N; Korngut, L.; CNDR Investigator Network, Poster Session EP.121, 2021 WMS

Uniting the Canadian NMD Community: One Year of the Neuromuscular Disease Network for Canada (NMD4C). Erin Beattie, James Dowling, Jodi Warman Chardon, Rashmi Kothary, Stacey Lintern, Reshma Amin, Teresa Buffone, Bernard Brais, Craig Campbell, Cynthia Gagnon, Hernan Gonorazky, Jason Karamchandani, Lawrence Korngut, Hugh McMillian, Maryam Oskoui, Homira Osman, Kathryn Selby, Daria Wojtal, Nicola Worsfold, and Hanns Lochmuller, Poster Session EP342, 2021 WMS

NMD4C: A New Neuromuscular Disease Network for Canada Kimberly Amburgey1, James Dowling1, Jodi Warman Chardon2, Rashmi Kothary3, Barbara Stead-Coyle4, Stacey Lintern4, Bernard Brais5, Craig Campbell6, Cynthia Gagnon7, Hugh McMillan8, Kathryn Selby9, Lawrence Korngut10, Maryam Oskoui11, Reshma Amin12, Perry Esler13, Nicola Worsfold13, Teresa Buffone14, Daria Wojtal4, Homira Osman4, and Hanns Lochmuller , Poster Session EP.348, 2020 WMS

· Duchenne Community Advisory Board (CAB) 2019-current

· Canadian Neuromuscular Disease Registry (CNDR) Investigator Network 2019-current

· Neuromuscular Disease Network 4 Canada (NMD4C) Knowledge user 2020-current

· Neuromuscular Disease Network 4 Canada (NMD4C) Investigator 2020-2022

· Patient partner leadership training, Canadian Organization for Rare Disorders (CORD) 2020-2021

· The Ontario Rare Disease Implementation Plan steering committee 2017-2018

· Project Hercules an international patient led multi stakeholder collaboration developing tools and evidence supporting HTA (Health Technology Assessment) for new treatments for Duchenne 2017-2021

· Hockey trainer for U15 girls Leaside Wildcats

· Member of the Hanlan Rowing Club master’s crew. Current volunteer coach, previous gold medalist at the 2017, 2016 and 2015 Ontario Masters Championships, gold medalist at the 2015 and 2018 Cora Welland Regatta, and 4th place finish at the Royal Canadian Henley regatta 2017.

· Enjoy all water sports (canoeing, kayaking), camping, biking, gourmet cooking, walking my dogs.

· Recipient of the Fredrick P. Ide Graduate Award

· Awarded a University of Toronto fellowship