Seven years of active engagement in patient advisory and patient partnership work on local, provincial, national, and international levels.
Engaged with healthcare research, service delivery, and patient-led groups, at all levels of healthcare professional post-secondary education, within regulatory systems, health technology, and both non-governmental and governmental organizations.
Extensive experience with committee work, policy review, and assessment of accessibility and accommodations.
Public speaker who connects with audiences, from small groups to larger audiences, including webinars, conferences, and panels, both in-person and virtually.
Spoken to elementary, middle, and high school classrooms, college, bachelor, graduate, PhD, and post-doctoral students on topics ranging from pain and neurology in language to accessibility and inclusion.
Overview
7
7
years of professional experience
Work History
Advisory Committee Member
Institute for Safe Medication Practices Canada
01.2021
Advisory Committee for Medication Safety Considerations for Special Populations: Pediatrics E-learning Module - Children use medication
Patient Partner
Winnipeg Regional Health Authority
01.2017
Part of Accreditation Canada’s 2020 and 2021 assessment of WRHA patient-oriented care
Member of hiring committee for new Patient Engagement Co-ordinator, 2023
Part of the Steering Committee creating new Patient Engagement Framework
Patient Evaluator
AI4PH - Artificial Intelligence for Public Health
1 2023 - Current
Member of Community Advisory Board that works to develop, implement, and evaluate health research training programs to ensure the researchers produced by this program are responsive to a diverse range of communities
Patient Evaluator
Patient Advisors Network and the Centre for Digital Health Evaluation
01.2023 - Current
Trained to be part of team of patient evaluators who assess digital health related projects on technology, feasibility, impact, scale and spread, and engagement with both patients and professionals
Part of summer project assessing patient evaluation collaboration of PAN and CDHE
Patient Evaluator
Centre for Digital Health Evaluation and the Women’s Hospital Institute for Health System Solutions and Virtual Care
01.2023 - Current
Part of multiple digital health assessment research programs for Ontario Health
AI Diabetic Retinopathy, Digital and Virtual Care Secretariat Closeout Reports, Evidence 2 Practice Phase 2, Digital and Virtual Care Secretariat 2.0 (DVCS 2.0)
Patient Advisor
OurCare Manitoba Priorities Panel on Primary Care
1 2023
Member of panel discussing the future of primary care, in the province and nationally
Wrote article for Healthy Debate on my experience
Patient Advisor
Canadian Institute for Social Prescribing
01.2023 - Current
Member of Canadian Social Prescribing Community of Practice
Patient Advisor
Barrier Free Manitoba
01.2023 - Current
Subject Matter Expert
Patient Advisor
Choosing Wisely Canada
01.2023 - Current
Member of the Patient Advisory Council for organization trying to eliminate unneeded medical interventions and their costs, differentiating between what treatments are truly supported by research and which are not
Member of Primary Care Stakeholder Network
Member of Climate Recommendation Review
Patient and Family Advisor
Shared Health Manitoba’s Patient and Family Advisor Network
01.2022 - Current
Part of committee developing new provincial patient advisor network
Co-chair of Network Advisory Council, ongoing committee to advise network
Network Advisory Council representative at Provincial Engagement Community of Practice
Member of REI Data Governance Steering Committee
Patient Partner
George and Fay Yee Centre for Healthcare Innovation
01.2021 - Current
Co-chair Patient and Public Engagement Collaborative Partnership
Member Strategic Advisory Committee responsible for influencing research direction of the organization
Part of the review panel for Preparing for Research by Engaging Public and Patient Partners (PREPPP) Award 2021 and 2022
Judging and providing feedback on the engagement approaches proposed
Engaged as part of the Collaborative Partnership in Dr
Maya Jeyaraman’s research project, “Strengthening and validation of a new 360-degree tool to evaluate the patient and public engagement in health research” where I helped to inform the development of a “Trauma informed patient and public engagement evaluative tool (TI-PEET)”
Also helped to inform the method by which they engage other patient partners (i.e
The structure of the focus groups)
Patient and Family Advisor
Ontario Health AI Eye Health Screening
01.2022 - 01.2023
Centre for Digital Health Evaluation, Vision Loss Rehabilitation Canada, and Women’s College Hospital Institute for Health collaborative project
Part of AI Mediated Eye Health Screening Initiative, creating document “Planning for Sustainability, Spread & Scale of an AI Mediated Eye Health Screening Initiative” in treating diabetic neuropathy
Patient and Citizen Involvement Member
Health Technology Assessment International
01.2021 - 01.2022
Member of Patient and Citizen Involvement in HTA Interest Group
Patient and Community Advisory Committee Member
Canadian Agency for Drugs and Technologies in Health
01.2019 - 01.2022
Member of the first Patient and Community Advisory Committee of CADTH
Wrote and presented Learning Session to a group of non-clinical CADTH staff describing patient experience of being a patient, stigma, and privilege within healthcare
Education
Foundations in Patient Leadership Programme -
In Health Associates
Foundations in Patient Orientated Research: Modules 1-3 - undefined
Canadian Institute of Health Research
Certificate Course on Research Ethics: Tri-Council Policy Statement 2 (TCPS2-CORE) - undefined
Web Accessibility Initiative (WAI) Certificate - undefined
W3C
Publications
Co-author
PP126 Direct Patient Involvement In HTA In Canada And Brazil: The Patients’ Perspectives, Silva, A., Orecklin, P., Ferrite, S., International Journal of Technology Assessment in Health Care, 38, S1, S82-S82, 10.1017/S0266462322002471
Mentioned
Creating a patient and community advisory committee at the Canadian Agency for Drugs and Technologies in Health, Berglas, S., Vautour, N., Bell, D., International Journal of Technology Assessment in Health Care, 37, 1, E19, 10.1017/S0266462320002251
Five lessons from a year of virtual patient partnerships, Diana Duong, CMAJ, 193, 29, E1145-E1146, 10.1503/cmaj.1095953
Speaking Engagements
Shared Health’s Patient and Family Advisor Network, 2023, The Family Healthcare Experience nursing course about family dynamics of patient and caregivers
George and Fay Yee Centre for Healthcare Innovation, 2021, 2023, Preparing for Hybrid Engagement, Lessons Learned Engaging Virtually in a Pandemic, University of Manitoba pharmacy doctoral students in their first and third years about issues patients face and stigma against people with chronic pain, Meeting People Where They’re At: The Importance of Trauma Informed Engagement workshop at the 2021 SPOR Northwest Virtual Institute, Graduate students in Knowledge Translation course, Patient Engagement in Developing a Provincial Patient and Family Advisor Network, discussing Shared Health’s Patient and Family Advisor Network and its development
Canadian Agency for Drugs and Technologies in Health, 2020, CADTH and Patients: A Paradigm Shift to Seeking Patient and Community Partnership
Winnipeg Regional Health Authority, 2017, 2019, Family nursing class on relationships with caregivers and family dynamics, Red River College
University of Winnipeg, 2017, 2018, Metaphors used in describing pain and the neurological significance of word choice to linguistics class
Rick Hansen Foundation, 2016, 2021, Presented personal story and ideas of accessibility and inclusion to elementary, middle, and high schools
University of New England, 2013, Featured speaker to an audience of 1,000 healthcare students at conference “The Science of Pain, The Art of Healing”
Accomplishments
Featured in promotional material for the Patient and Family Advisor Network of Manitoba (2023)
First co-author of “Direct Patient Involvement in HTA in Canada and Brazil: The Patients Perspectives,” best poster winner at the Health Technology Assessment International Conference (2022)
Appeared in Canadian Medical Association Journal article “Five lessons from a year of virtual patient partnerships” on Centre for Healthcare Innovation webinar (2021)
Received HTAi Patient and Citizen Involvement in HTA Interest Group PASS scholarship to virtually attend the HTAi Annual Meetings (2021 and 2022)
Featured in “True Collaboration,” a title page article of the Winnipeg Regional Health Authority’s Wave Magazine. Discussed the success of policy changes resulting from my involvement in a Collaborative Care Workshop (2018)
Provincial contact for Promoting Awareness of Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome, Canada’s national CRPS organization; provide peer counseling when needed (2015 - Present)
Carried the Olympic Torch for the Vancouver Olympic Games on behalf of all Canadians with chronic pain (2010)
Timeline
Patient Evaluator
Patient Advisors Network and the Centre for Digital Health Evaluation
01.2023 - Current
Patient Evaluator
Centre for Digital Health Evaluation and the Women’s Hospital Institute for Health System Solutions and Virtual Care
01.2023 - Current
Patient Advisor
Canadian Institute for Social Prescribing
01.2023 - Current
Patient Advisor
Barrier Free Manitoba
01.2023 - Current
Patient Advisor
Choosing Wisely Canada
01.2023 - Current
Patient and Family Advisor
Shared Health Manitoba’s Patient and Family Advisor Network
01.2022 - Current
Patient and Family Advisor
Ontario Health AI Eye Health Screening
01.2022 - 01.2023
Advisory Committee Member
Institute for Safe Medication Practices Canada
01.2021
Patient Partner
George and Fay Yee Centre for Healthcare Innovation
01.2021 - Current
Patient and Citizen Involvement Member
Health Technology Assessment International
01.2021 - 01.2022
Patient and Community Advisory Committee Member
Canadian Agency for Drugs and Technologies in Health
01.2019 - 01.2022
Patient Partner
Winnipeg Regional Health Authority
01.2017
Patient Evaluator
AI4PH - Artificial Intelligence for Public Health
1 2023 - Current
Patient Advisor
OurCare Manitoba Priorities Panel on Primary Care
1 2023
Foundations in Patient Leadership Programme -
In Health Associates
Foundations in Patient Orientated Research: Modules 1-3 - undefined
Canadian Institute of Health Research
Certificate Course on Research Ethics: Tri-Council Policy Statement 2 (TCPS2-CORE) - undefined
Web Accessibility Initiative (WAI) Certificate - undefined
Restorative Practices Trainer at International Institute For Restorative PracticesRestorative Practices Trainer at International Institute For Restorative Practices
Restorative Practices Trainer at International Institute For Restorative PracticesRestorative Practices Trainer at International Institute For Restorative Practices